ret·ro·spect [ réttrə spèkt ]

Just 24 days shy of four years old, Aislynn loves life.

Today in the car she announced, " I am SO excited!" full of anticipation about the playdate we were driving to, and the new friends we would meet. She actually had no idea what we would be doing or who we would be doing it with.

"How many friends will there be?" she asked.

"I don't know," I said.

She followed up, "What will their names be?"

"We'll just have to wait and see," I responded.

On arriving to our playdate with some new moms we were meeting, all but one for the first time, Aislynn was beaming. "Ooo..they have a park in their back yard!" she announced.

Park, swing set, what's the difference right? Aislynn proceeded to play, greet some of the children, wave at the moms, and even serenade some of them with her rendition of Amazing Grace.

One of the moms asked me, "Has she always been this friendly?"

And there it was, the question I never dreamed I would be asked in regards to this little girl. It was a question I only dreamed, hoped, and prayed a little less than 2 years ago that I might be asked someday.

I responded to the mom's question, and gave a mini synopsis of Aislynn's 180 degree turn around trip from anti-social, to social extremist. The mom of course, was very surprised by my response based on Aislynn's current extremely happy and social demeanor.

On the way home I started to think back. It was one of those retrospective moments. A moment where you are outside of a particular situation and you actually have some perspective, Rays of light finally shine through. You actually find some light at the end of an endless dark tunnel. You need those moments to give you hope for the other tunnels you still might find yourself in.

And so I realized that everyone we meet and have met in our new home in Bloomington Indiana will meet my extremely friendly, sweet, smart, kind and outgoing little girl.

They will never know that this same little girl who runs right up to people eager to introduce herself, used to freeze like a deer in the headlights when other children her same age approached. They will never know that she used to refuse to acknowledge other children and actually ran away from them.

This little lover of all new experiences and people used to cry when things were not "just so" or when new people were in the mix. I even remember the Christmas after she turned 2, celebrating Christmas at my in-laws when she refused to sit at the table with her aunt, uncle, and cousins the first night we arrived. She barely made it into the house. It was so extreme, we had to eat in the other room away from everyone else that first night. Those were some dark moments.

And once again I remember dreaming, hoping, and praying that someday, someday she might become more social. I dreamed, hoped, and prayed that she would find a way to enjoy other people, tolerate new experiences, love life, and tell me all her little ponderings while eating more than 5 foods. Many days, it seemed like an unattainable goal, and merely a dream.

But hope never died. We pressed on through the sometimes very dark tunnel because we knew there would be light at the end if we could hold on to hope. Life is not perfect. Aislynn is not prefect. But she is a dream come true.

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NEVER would have happened 2 years ago. Now a reality...

Reading to little sis...


Hugging little sis...even though little sis is turning out to be quite the little bully...


Fireworks, loud noises...


Trying and LOVING new things...


Loving friends, being a friend.

Look how far we've come...

There’s nothing cuter than 3 year old little girls wearing leotards attempting ballet poses. Aislynn gave ballet a try this week with much enthusiasm. After a full week of talking about going to ballet class, followed by “practicing” for ballet class, the actual day of ballet class finally arrived. Fully decked out in ballet apparel a full 3 hours before class, Aislynn anxiously waited for 2:30PM to arrive (our scheduled departure time). When 2:30PM finally rolled around, she commented, “This is going to be GREAT mom!” On the drive over, I actually started to feel a little nervous, hoping this little 30 min ballet class would meet my little “ballerina-to-be’s” enthusiastic expectations.

We walked into the tiny ballet studio and met Mrs. H. “HELLO BALLET TEACHER!” Aislynn excitedly proclaimed. I am convinced Aislynn might actually be the most enthusiastic student to greet Mrs H. in her 39+ years teaching ballet. Mrs H. found some tap shoes for a grinning Aislynn to try on while waiting for the other students to arrive. 5 minutes later, 3 little girls decked out in leotards, ballet skirts, and hair bows walked into the room, immediately greeted by the newest and happiest addition to their class. Aislynn was actually entering the ballet classes 2 classes into the session and took it upon herself to make up some lost time with her fellow ballerinas. “Hi girls!” She announced vigorously waving as she approached the small cluster, “It's time for our ballet class! My name is Aislynn Rae Fuller,” then turning to me she asked, “What are all the girl’s names?” Her fellow classmates actually looked a bit surprised. I think they too, had never met such an enthusiastic little girl. I turned to the moms and said, “As you can see, she is very excited to be here.” They all smiled.

Finally the moment arrived. The tiny class of tiny ballerinas was under way. They started with a variety of body movements and marching with little tap shoes. Next, ballet shoes, some attempted leaping across the room, ballet bar, tumbling and rolling on a mat, and of course stretching. Mrs. H’s clear expertise showed, as she spent just the right amount of time on ever step to keep the girls attention. It was a jam packed 3o mins. filled with new things, unpredictables, music, concentration, interaction, and of course fun.

For me this sweet, simple 30 min ballet class represented a milestone. All the components of this day-the new faces, friends, activities, sounds, unknowns-that made it so joyous for my little life lover, would have sent her into a tailspin 1.5 years ago. Today as I attempted to tidy up and go through boxes on a search for my missing wedding ring (we’ll save that story for another day, hopefully when I am sharing how I found my missing ring), I came across a large blue binder titled, “Aislynn’s therapy notebook.” Flipping through the dense book evoked mixed emotions: Gratefulness and thankfulness realizing where we are at and how far we have come; anxiety and fear, remembering such an unpredictable and difficult time.

I remembered weeks filled with 4-5 various therapy sessions a week while caring for a very cranky, fussy baby Isla (see left, Andy working his magic on high maintenance baby Isla). I remembered exhausted, sleepless nights getting up with a newborn, wrestling with a possible autism diagnosis, and dreaming about activities I could do with Aislynn to help with her various delays. I reflected on the chaos of fear, while trying to find peace with what the future might hold. I actually felt my heart rate accelerate as I flipped open the book to the section entitled “evaluations.” I pulled out a report entitled “Initial speech language pathology report, 12/14/07.” At that time my now 3.5 year old socialite and enthusiastic lover of life, was a very different little girl.

At the time of this initial speech evaluation, Aislynn was 26 months old (see right, Aislynn 26 months playing in 10lbs of rice = sensory activity time). You can read a condensed version of Aislynn’s developmental journey here. I skimmed the report flipping to the “stats” on the last page and Aislynn’s delays laid out plainly in percentages according to the Rossetti Infant Toddler Language Scale: Pragmatics 35% delay, Gesture 23% delay, play 35% delay, language comprehension 15% delay, language expression 12% delay. This evaluation only dealt with language and socialization. We also had issues in the area of nutrition, feeding, sensory, and occupational therapy.

At that point in time-where I am standing right now-was nowhere close to being a reality, only a hope and a dream. Back then, it was in my moments of optimism, hope, faith, belief, and pleading with God that I saw glimpses of playdates instead of solitary play, joyful greetings instead of tantrums and refusing to say hello to others, and conversations laughing and talking instead of scripted and literal speech. It was in my most hopeful times that I dreamed someday my little girl might go to ballet class with other little girls and laugh, smile, and pose. Answers.com defines hope, “to wish for something with expectation of its fulfillment.” Today I am fulfilled.

Grateful

Today I am grateful that I have a little girl that likes to run around barefoot, roll around in the grass, run up and down a small hill like it is an amusement park ride, fling the bubble wand around with so much enthusiasm that bubbles truly go in all directions, and sing songs indoors and out with great passion.

We'll give thanks to You
With gratitude
For lessons learned in how to trust in You
That we are blessed beyond what we could ever dream
In abundance or in need
And if You never grant us peace

But Jesus, would You please . . .

Last lyrics in the song "Gratitude" by Nichole Nordeman

Peanuts and Pink Nails

Last week I bought some bright pink nail polish at the store on a grocery run-how easily I wander off task! But when I saw that the 60 sec fast dry nail polish was 50% off, I added it to the list.

Every once in a great while I feel this strange motivation to buy nail polish, though I rarely, hardly ever paint any of my 20 nails. And when I do paint them, I always think "Why did I paint my nails! I am horrible at this!" And I do not have particularly attractive hands or feet-especially the feet. I have been known to be called "clay toes." But that is a story for another day...

So I took my nail polish home and put it in my bathroom where it had the potential to sit a very long time. A few nights later, I was getting Aislynn out of the bath when she noticed the nail polish, "Pink!" she exclaimed. I smiled to hear my little girl's enthusiasm and appreciation for a truly wonderful color. "Yes," I said, "It for painting nails." To which she responded, "Aislynn pink nail?" "Do you want Mommy to paint your nails pink?" "OK." She said, as if it was my idea and she was going along with it. She is sneaky that way.

She held out her little hand and I slowly painted one nail. Since this was her first beautifying experience with nail polish, I thought I had better stick to just one, in case she changed her mind half way through and I was without nail polish remover. Although I had purchased the "60 second" super fast drying polish, this was the first testing of this claim. The nail looked very pink to Aislynn's delight. "One pink nail!" she shouted, holding up her finger triumphantly. She bolted from the bathroom and showed Daddy and Isla her pink nail as well as herself this wonderful sight in a free standing mirror. Throughout the rest of the week she had many opportunities to happily show people her pink nail. I am sure people halfway wondered why she only had one nail painted. Or maybe they just thought she got a hold of the polish-I will admit the paint job was not my finest.

After one full week with just "one pink nail" I decided Aislynn might be ready for the full set. After she showed me her pink nail while drying off from a bath, I asked her if she wanted me to paint more nails. "Ok!" she exclaimed. We sat on the rug in the bathroom and she patiently stretched out her little hands as I attempted to paint just her nail and not her whole finger! As I painted each nail, she pointed to the next and said, "And this one" just in case I happened to skip over it like I did the other nine last time!
Once they were all painted I blew on them to try to help them dry faster. To my amazement, Aislynn did not try to touch them or scrape off the polish. She held her hands still and then up in the air and declared, "Oh that's nice!" Then she bolted from the bathroom ready to go on her "nail show-and-tell tour" throughout the house.

For me, this was about more than pink nails. 5 months ago this could not and would not have happened. If I had tried to paint Aislynn's nail she would have not been happy about it. She would not have sat still at all. If I had tried to explain it to her, she would not, or could not have understood it. If I had tried to just dialogue with her about this seemingly random and unimportant event, there would have been little said or understood. This experience is just another reminder to me how normal things are now and how far we have come. 4 months ago I half wondered if I would ever be able to have a real conversation about anything with my little girl. Today I sat on the bathroom floor and painted my little girl's nails upon her request.

Today I feel grateful for where we are and how far we have come. I feel grateful that I can ask my little girl a question and she can understand it and respond. I feel grateful that my little girl wants me to paint her nails. I feel grateful that tonight, she walked over to the pantry like it was nothing, pointed up to the shelf and said "Peanuts please."

On a personal note...some GOOD NEWS.

Some of you may be aware that a few months ago we enrolled Aislynn into a "feeding group" to help with her food sensitivity/sensory issues through the Early Intervention State Program. At the same time we had some concerns about her speech and social development. After some developmental evaluations were conducted, it was suggested to us that Aislynn might be exhibiting signs of mild autism, placing her on the Autism Spectrum. At this point a recommendation was made for us to have a developmental diagnostic done by professionals who specialized in early detection of autism. This was a lot for us to take in, especially while dealing with a newborn with her own set of needs. Regardless, we went full force ahead. Aislynn started the feeding group and nutrition, as well as speech therapy and developmental therapy. In addition, Andy and I worked with Aislynn at home as much as we could, focusing on some of the concepts she was struggling with. We got on the waiting list to have a diagnostic completed (a three month wait) and trusted God had His hand on the situation.

I felt like we were at a very critical point where things could go one way or the other. Aislynn's delays might just be that, delays, or they could be signs of mild autism. No matter what the outcome would be, we felt that early intervention was definitely the way to go. As the weeks went by, I really had a piece about the situation. I felt that everything would be alright, no matter what the outcome, but only time would tell.

Over the last few months we have really seen an explosion in Aislynn's speech and social development. She is a very affectionate, smart little girl who has a sense of humor. She loves to read, sing, cook, be thrown around, and chased.These last 12 weeks, I really have felt more and more like Aislynn's issues were/are developmental and not autism.

On Sunday, we went into Chicago to spend the night in preparation for our early appointment at Illinois Masonic in Chicago where Aislynn's diagnostic would be conducted. Monday morning she was evaluated by developmental, speech, and occupational specialists as well as psychologists. They were all in full agreement that Aislynn is NOT autistic and never will be. They said that her speech and social issues are developmental delays and that she should catch up just fine in these areas over time and with help. We were very relieved and encouraged by this news! I was really praying that we would find out one way or another exactly what we were dealing with. If it was autism we would do what we needed to do, but I wanted to know for sure. If it was not autism, I wanted to know what we should be doing to help her catch up. I am so happy that this prayer was answered!

I just wanted to share this good news with all of you and thank you for your prayers and concern throughout this whole situation!

Love,
Brooke

the best news of the year

"Your daughter does not have autism."